Resources and Useful Information

CTT aims to complement other NF charities, our focus is camps, days out and to fund research, as such we are not producing our own information sheets. There are already lots of great information leaflets out there you just need to know where to look.

Whilst CTT is here to support those with Neurofibromatosis Type 1, we are not here to give medical advice.

Join our friendly facebook group –  CTT Support and Information a closed group where you can ask any questions or ask for advice from other parents.

Red Book Insert

CTT have produced a Red Book insert on NF1 this will help parents and medical professionals on how to care for a child with NF1. To order a copy click here.

Red Book Insert
Personal Child Health Report

The NF File©MMU 2018

The NF File©MMU 2018 is a comprehensive file about Neurofibromatosis 1 (NF1). It has been designed to provide accessible information about a person with NF1 It is hoped that the NF File©MMU 2018 can be shown to people to save having to explain over and over again what NF1 is, and importantly it is intended to convey the individuality of a person as well as detailing how their NF1 and associated conditions affect them. The NF File can also be used to explain to a child what NF is, specifically in the way it affects them, in a way that is age appropriate. Suggestions are helping to customise the file, choosing photos and colouring in, or adding stickers. You may choose to use this file simply as a resource for storing all your information in one place, there is no requirement to share it (or some of it) if you do not wish to. Click here to request a copy.

Attendance Letter

Many children with NF1 or any other medical condition rarely get the 100% certificates given out at school, due to hospital appointments, illness etc, this letter is to send to the Head explaining why its not correct to discriminate. Click here to download the Attendance Letter.

Letter for School

Whilst CTT cannot comment on how a particiular child is at school, we have produced a generic letter to explain how how NF1 can affect a child in school. Click here to download the Letter for School.

CTT aims to complement other NF charities, there are lots of great information leaflets out there you just need to know where to look.

CPD Module: Understanding neurofibromatosis type 1 (NF1)

CPD module on NF1 for professionals, created in partnership with Health Professional Academy with the video being produced by Health Sketch. Click here to take the module.

NF1 CPD module

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