Skip to main content

Supporting children, young adults and their families up to the age of 30

Supporting children, young adults and their families up to the age of 35

Meet Our Regional Volunteers

At Childhood Tumour Trust, we know how important it is for families and individuals  affected by Neurofibromatosis Type 1 (NF1) to feel connected, supported and understood. While our community spans the whole of the UK, we also recognise that local support can make a real difference.

That is why we are developing our network of Regional Volunteers.

Click on the map below to see if there is a Regional Volunteer in your area. We will add more volunteers as we build our support network.

Regional Volunteers can:

  • Help welcome new families into the NF1 community
  • Signpost families to Childhood Tumour Trust services and resources
  • Support local gatherings and community events
  • Help raise awareness of NF1 in their area
  • Provide a friendly local connection to our wider charity network

While our volunteers are not healthcare professionals and cannot provide medical advice, they understand many of the challenges of living with NF1 and can help families feel less alone.

If there is a Regional Volunteer in your area and you would like to make contact, or if you are interested in becoming a Regional Volunteer yourself, we would love to hear from you.

Together, we are building a stronger, more connected NF1 community across the UK — ensuring that no child, young person or family has to face NF1 alone.

Interested in getting involved?

Contact us at Childhood Tumour Trust to find out more about becoming a Regional Volunteer or connecting with your local representative.