Our partners and helpful links
Tumour Support Scotland*
Tumour Support Scotland provides support and resources for individuals affected by tumors, including those related to Neurofibromatosis Type 1 (NF1). They offer information, emotional support, and practical assistance to help patients and their families navigate their journey.
Childhood Tumour Trust works closely with TSS and when we can we work on projects together.

NF Association of Ireland*
The NF Association of Ireland supports individuals and families affected by Neurofibromatosis in Ireland. They provide information, advocacy, and resources tailored to those living with NF1, aiming to improve understanding and care for the condition.
Childhood Tumour Trust works closely with NFAI and we hold cross border events such as trips to Dublin and Belfast zoo as we realise it is not always easy for our friends in Northern Ireland to travel to the mainland.
Nerve Tumours UK (formerly NF Association)

Children’s Tumor Foundation (USA)*

Hypermobility Syndromes Association
Scoliosis Association UK (SAUK)
Changing Faces

Rays of Sunshine

Barrie Wells Trust*

Beacon for Rare Diseases*

Rare Minds*

NF Patients United*
