We are also happy to send out to hospitals,GP's and health visitors please contact us directly.
Offering a range of gifts and personalised items designed or made by Stacey at Tasana. I am passionate about fundraising so a minimum of 10% of all sales will be donated to a charity. The relevant charity and donation amount will be mentioned in each listing. I also work with Childhood Tumour Trust to provide their merchandise.
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When your child is diagnosed with an incurable medical condition; your entire world is turned upside down! As a parent/carer you leave the hospital/doctors with your head in a whirl. Having a child who is diagnosed with any medical condition is hard to understand and deal with, but when your child has a diagnosis Read more...
Make a one-off donation or pledge a monthly gift. Just £2 a month would make a difference.
There are many ways in which you can raise awareness and funds, both of which are so important.
Fundraising and Awareness Ideas:
Nicole like many other children with NF1 had a very lonely and isolated childhood. She had no real friends and was often left on her own. It didn’t help that she was in and out of hospital almost more than she was in school and with learning difficulties she was seen as different. It was heartbreaking, this was on top of struggling with the medical side of a large tumour causing her immense pain and mobility issues.
When Nicole was 14 she found a camp for children with NF in America, this camp was run by the Children’s Tumor Foundation.
Childhood Tumour Trust is proud to initiate and support campaigns which we feel will benefit people with neurofibromatosis type 1. We are currently campaigning for the inclusion of café au lait marks in the Child Health Record (known as the Red Book). We feel strongly that café au lait marks should be included on a body map to avoid late or even non diagnosis of NF1. The majority of children who present with 6 or more café au lait marks before the age of 5 in fact do have NF1.
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