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What is Neurofibromatosis Type 1 (NF1)?

Neurofibromatosis type1 (NF1) is the most common type of the 3 types of neurofibromatosis affecting around 1 in 3000 people.  

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Diagnosis what next?

Diagnosis can be overwhelming - remember you are not on your own.

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What we do

When your child is diagnosed with an incurable medical condition; your entire world is turned upside down! As a parent/carer you leave the

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Latest News

Keep up to date with all the latest news, upcoming events and articles from Childhood Tumour Trust on our news page!

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How You Can Help

Make a one-off donation or pledge a monthly gift. Just £2 a month would make a difference. There are many ways in ....

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Resources

CTT aims to complement other NF charities, our focus is camps, days out and to fund research, as such we are not producing our own information sheets.

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Education and NF1

Children with NF1 can thrive in school and have fantastic achievements, but some will need additional support to meet....

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