Childhood Tumour Trust

Bringing people together

Camp

We are proud to offer a 4-day residential camp for young people aged 12-17, hosted by a regulated activity provider. Our camp provides a safe and supportive environment where teens can engage in a variety of activities. It’s a place to make new friends who just ‘get it’, learn new skills and have loads of fun. Join a community that truly understands you and create memories that will last a lifetime.

“I like camp because it allows you to be yourself.”

“I like camp because I make lots of new friends.”

“Camp allows me to do the things I never would have on my own.”

“I don’t have to fake a smile at camp; it’s real.”

Camp

Please email camps@childhoodtumourtrust.org.uk for more details.

“I like camp because it allows you to be yourself.”

“I like camp because I make lots of new friends.”

“Camp allows me to do the things I never would have on my own.”

“I don’t have to fake a smile at camp; it’s real.”

Watch our camp video with sound

Days out

Join us for unforgettable family days out with Childhood Tumour Trust! Our events at Alton Towers, Chessington, and other local venues offer a much-needed break from hospitals, scans, and worries. These outings are a chance for the whole family; parents, siblings and children with NF1 to connect with others who truly understand. Enjoy a fun-filled day, build lasting friendships and be part of a supportive community.

Details are posted in our Facebook support group

Online activites

Our online sessions offer a fun and interactive way for NF Warriors of all ages to connect and learn new skills from the comfort of home. Join our regular sessions, like cookery, arts and crafts, and sign to songs, or participate in special events throughout the year, such as ceramics and virtual parties. These sessions are a fantastic opportunity to meet others in the NF community, chat, and enjoy shared experiences while learning new skills.

Details are posted in our Facebook support group or email joanne@childhoodtumourtrust.org.uk

“Without the Zoom activities, Beth would feel isolated and alone, not having friends that understand both her condition and difficulties. These sessions have given her real, tangible life skills, whether learning to bake and cook or being creative in her own home.”

“Freya loves art and has really enjoyed the craft sessions. It has kept her in touch with other children and opened the way to very easy, relaxed conversations about NF1. She is coming to understand the condition and now knows others who are in the same boat. She has started to draw cafe au lait on her characters, which shows she is starting to process it all.”

16–30 Community Group

Our 16-30 Facebook community group is a supportive space for young adults with NF1 to connect, share experiences and find encouragement from each other.

Welcome to the team

Youth ambassadors

Our Youth Ambassadors are inspiring young individuals, dedicated to raising awareness of NF1 and representing the Childhood Tumour Trust. They provide support to their peers through the 16-30 Community Group, plan activities and take on leadership roles at our NF Camp. They also participate in impactful events like the Youth Academy with NF Patients United, where they engage in workshops, attend lectures and develop skills to educate others about NF1.

The Youth Ambassadors regularly meet via Zoom to connect, share ideas and plan their initiatives. Passionate about empowering the next generation of NF Warriors, they are committed to driving change and building a supportive community.

Our Youth Ambassadors are committed to making a difference and empowering the next generation of NF Warriors. For more information email youthambassadors@childhoodtumourtrust.org.uk or join the 16-30 Facebook community group.

Kay

“I am honoured to serve as a youth coordinator and trustee, as it allows me the privilege to support individuals with NF1 on their journey.”

Bethany

“I feel privileged to be a youth ambassador for the Childhood Tumour Trust and I will strive to raise awareness along with creating positivity around Neurofibromatosis.”

Joel

“Hello I’m Joel, I’m feeling very excited and nervous about this and can’t wait to push myself to new limites and see what I can achieve by representing CTT in even more ways possible.”

Rebecca

“Hi I’m Rebecca and I’m so incredibly excited and grateful to become a youth ambassador for Childhood Tumour Trust. For CTT in the future I’m hoping to spread the word about all the amazing things CTT has to offer whilst also working with an amazing team in order to fundraise, learn and expand.”

Fran

“I am looking forward to becoming a Youth Ambassador for CTT. I want to improve patient advocacy and patient care for teenagers and young adults. I also want to help build confidence in all the young people. I’m also looking forward to going to NF related events to help with this.”

Caitlin

“I’m really excited and happy to continue volunteering as a youth ambassador. I’m looking forward to continuing to work with the current YA’s and new ones.”

Ruby

“I’m looking forward to continuing as a youth ambassador and helping our new YA’s flourish in their roles and receive some incredible opportunities like I have.”