Supppoting adolescents with rare disease
Our Youth Ambassador Nicole Martin and mum give a frank experience on how transition affected them, and how it could be improved.
Vanessa and Nicole Martin: Mother and daughter Vanessa and Nicole Martin bring their perspective of living through transitions into adolescents with a rare disease.
Nicole has neurofibromatosis type 1 (NF1) and Vanessa is the founder of the charity Childhood Tumour Trust.
