Supppoting adolescents with rare disease

Our Youth Ambassador Nicole Martin and mum give a frank experience on how transition affected them, and how it could be improved.

Vanessa and Nicole Martin: Mother and daughter Vanessa and Nicole Martin bring their perspective of living through transitions into adolescents with a rare disease.

Nicole has neurofibromatosis type 1 (NF1) and Vanessa is the founder of the charity Childhood Tumour Trust.

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