I am sure some of you read our previous blog about Tina – a young girl from Takoradi who is diagnosed with Neurofibromatosis, type 1. I cannot believe it was just over a year ago that we received a phone call about a girl who had received debulking surgery in Kumasi and was now being
Read moreWow, what a spooky day we have had with our NF Warriors celebrating Halloween over Zoom! Some have been baking creepy Witches Fingers with Mrs Bun the Baker Cookery School and others have been partying away Halloween style with Jay from Party Peeps – Children’s Virtual Parties! The smiles on their faces just say it
Read moreOffering a range of gifts and personalised items designed and/or made by Stacey at Tasana. I am passionate about fundraising so a minimum of 10% of all sales will be donated to a charity. The relevant charity and donation amount will be mentioned in each listing. I also work with Childhood Tumour Trust to provide
Read moreOctober is Breast Cancer Awareness Month. Early detection of breast cancer is vital for better treatment outcomes. Screening programmes to detect cancer at an early stage, healthy lifestyle choices such as regularly exercising, not smoking, and eating a balanced diet, all contribute to reducing our risk of developing breast cancer. Being breast aware also plays
Read moreAnastasi, N. and Lusher, J. (2017) ‘The impact of breast cancer awareness interventions on breast screening uptake among women in the United Kingdom: A systematic review.’ Journal of Health Psychology, 24(1) pp. 113-124. Breast Cancer Care (2020) Know your breasts. A guide to breast awareness and screening. Breast Cancer Now. [Online] [Accessed on 10th October
Read moreDr Carly Jim, Manchester Metropolitan University / Childhood Tumour Trust (CTT) Vanessa Martin Chair Childhood Tumour Trust (CTT) Dr Sue Huson Head of the Medical Advisory board Childhood Tumour Trust (CTT) Dr Georgina Bird-Lieberman Medical Advisor Childhood Tumour Trust (CTT) Nicholas Johns, Manchester Metropolitan University Psychology Student Nicola Branch, Manchester Metropolitan University Psychology Student The
Read moreWe were all disappointed that camp could not go ahead and all our face to face activities like Build a Bear, and our special events at Alton Towers and Chessington. However, we adapted! First of all, we held some Mary Poppins Virtual Tea Parties hosted by https://www.marypoppinstribute.co.uk/ Our children sang favourite songs and flew a
Read moreWe are delighted to have sent a team to this event where new knowledge and details of research were shared. CTT organised a dinner on one evening for medics, reseachers, parents and patients to get together to say hello Nicole Martin our Youth Ambassador played the perfect host and it was a nice start to
Read moreEarlier this year Medics4RareDiseases (M4RD) helped Childhood Tumour Trust (CTT) search for a doctor that could attend the International Neurofibromatosis Conference in San Francisco this September. The successful candidate would learn about the latest developments in Neurofibromatosis Type 1, make connections and report back to CTT. With the help of M4RD, CTT received a number
Read moreOur 3rd Annual VIP trip to Alton Towers held in June was another great success. over 180 children with NF1, and their familiies met up for a day of fun and thrills. We had the corporate tent and were treated to a most delicious lunch and all the families had a chance to meet others
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