Latest News

Childhood Tumour Trust Appoints New Medical Advisory Board Members

Earlier this year Medics4RareDiseases (M4RD) helped Childhood Tumour Trust (CTT) search for a doctor that could attend the International Neurofibromatosis Conference in San Francisco this September. The successful candidate would learn about the latest developments in Neurofibromatosis Type 1, make connections and report back to CTT. With the help of M4RD, CTT received a number

VIP Family days out to Alton Towers and Chessington

Our 3rd Annual VIP trip to Alton Towers held in June was another great success. over 180 children with NF1, and their familiies met up for a day of fun and thrills. We had the corporate tent and were treated to a most delicious lunch and all the families had a chance to meet others

When Birthmarks Mean So Much More – Life Like Dolls Commissioned To Change Lives

Tumour Charity Commissioned Lifelike Doll to improve diagnosis of genetic condition Dolls will educate key health officials when birthmarks cannot be ignored in babies The Childhood Tumour Trust (CTT) charity have commissioned life-like dolls, “Birthmark Babies” to improve earlier diagnosis of the genetic condition, Neurofibromatosi s type 1 (NF1) – a condition which is regularly