Latest News

Supppoting adolescents with rare disease

Our Youth Ambassador Nicole Martin and mum give a frank experience on how transition affected them, and how it could be improved. Vanessa and Nicole Martin: Mother and daughter Vanessa and Nicole Martin bring their perspective of living through transitions into adolescents with a rare disease. Nicole has neurofibromatosis type 1 (NF1) and Vanessa is

A Year of Achievement for Tina

I am sure some of you read our previous blog about Tina – a young girl from Takoradi who is diagnosed with Neurofibromatosis, type 1. I cannot believe it was just over a year ago that we received a phone call about a girl who had received debulking surgery in Kumasi and was now being

Spooky October Half Term Fun for our NF warriors

Wow, what a spooky day we have had with our NF Warriors celebrating Halloween over Zoom! Some have been baking creepy Witches Fingers with Mrs Bun the Baker Cookery School and others have been partying away Halloween style with Jay from Party Peeps – Children’s Virtual Parties! The smiles on their faces just say it

Tasana Shop is Selling our Merchandise

Offering a range of gifts and personalised items designed and/or made by Stacey at Tasana. I am passionate about fundraising so a minimum of 10% of all sales will be donated to a charity. The relevant charity and donation amount will be mentioned in each listing. I also work with Childhood Tumour Trust to provide

October is Breast Cancer Awareness Month

October is Breast Cancer Awareness Month. Early detection of breast cancer is vital for better treatment outcomes. Screening programmes to detect cancer at an early stage, healthy lifestyle choices such as regularly exercising, not smoking, and eating a balanced diet, all contribute to reducing our risk of developing breast cancer. Being breast aware also plays

References of Breast Awareness Article Caitriona Plunkett

Anastasi, N. and Lusher, J. (2017) ‘The impact of breast cancer awareness interventions on breast screening uptake among women in the United Kingdom: A systematic review.’ Journal of Health Psychology, 24(1) pp. 113-124. Breast Cancer Care (2020) Know your breasts. A guide to breast awareness and screening. Breast Cancer Now. [Online] [Accessed on 10th October

Reflections on attending the Children’s Tumour Foundation’s (CTF) annual Conference 2020

Dr Carly Jim, Manchester Metropolitan University / Childhood Tumour Trust (CTT) Vanessa Martin Chair Childhood Tumour Trust (CTT) Dr Sue Huson Head of the Medical Advisory board Childhood Tumour Trust (CTT) Dr Georgina Bird-Lieberman Medical Advisor Childhood Tumour Trust (CTT) Nicholas Johns, Manchester Metropolitan University Psychology Student Nicola Branch, Manchester Metropolitan University Psychology Student The

Childhood Tumour Trust – Fun in Lockdown

We were all disappointed that camp could not go ahead and all our face to face activities like Build a Bear, and our special events at Alton Towers and Chessington. However, we adapted! First of all, we held some Mary Poppins Virtual Tea Parties hosted by https://www.marypoppinstribute.co.uk/ Our children sang favourite songs and flew a

Children’s Tumour Foundation NF Conference San Francisco

We are delighted to have sent a team to this event where new knowledge and details of research were shared. CTT organised a dinner on one evening for medics, reseachers, parents and patients to get together to say hello Nicole Martin our Youth Ambassador played the perfect host and it was a nice start to

Childhood Tumour Trust Appoints New Medical Advisory Board Members

Earlier this year Medics4RareDiseases (M4RD) helped Childhood Tumour Trust (CTT) search for a doctor that could attend the International Neurofibromatosis Conference in San Francisco this September. The successful candidate would learn about the latest developments in Neurofibromatosis Type 1, make connections and report back to CTT. With the help of M4RD, CTT received a number